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Saturday, March 24, 2012

I walked in my space today, sat on the couch and spent a good deal of time trying to make sense of this Gastroparesis Diet. It's best to wait til Monday when they contact the Dr. and find out once and for all did I also have GERD because if so, half the diet will go out the window and if not, I've been taking meds for several years that I didn't need to.
Don't let all this worry you. The point is, question everything. If it doesn't make sense to you, ask your doctor to simplify it until you do. If it still doesn't, don't hesitate, get a 2nd opinion. I only know of one perfect being on this earth and it was Jesus Christ. All are capable of mistakes. I have saved my own life at least twice by not trusting the feeling I had and got a 2nd opinion.
Still say, Pepto Bismol is king.

Friday, March 23, 2012

It has been a crazy day. Everything planned fell through and small emergencies took over. I was able to get in at the last minute to get "light box" for my rare lymphomatic skin cancer (have I ever mentioned that? I better look back) and as I walked back to my car, my daughter called in despair. A one hour dentist visit turned into over 3 hours with a cavity under her crown deep into the bone. So for once I was the one helping out, running for meds and comfort goodies. I bought her a small basket and filled it with puzzles, candy, lip gloss and,,, Drum Roll, Please....Cadbury Cream Eggs.
Still a little out of it, I drove my grand angels to their Karate Class and home via 7-11 for slurpees, cream cheese taquitos and chips.
Lymphomatoid Papulosis. My diagnosis in 1997, It is very rare, no known cause and no cure but various treatments. Many doctors still have not heard of it. It was named in the mid 1970's. The disease alone will not kill me, but it increases my chances of Non Hodgkins by 30%.  Blood tests every 3 months and 6 methotrexate pills a week, plus the narrow band rays in a light box have helped me keep in in a lower grade. That is for another day. Some have it worse than others, there's different ways of manifestation on the skin.
Dan is still limping and wore another patch tonight but it looks to be decreasing in swelling.
Sorry, if I was all over the map tonight. Still jittery from an active day.

Thursday, March 22, 2012

Dan's discomfort is easing a titch. (spell check will love that) but his knee has doubled in size. Last night we wrapped a Tylenol Heat Patch on it and he said that made the night easier to get through. He wants to try again tonight. Since the injury occurred while he was on a job I have begun filling out a worker's comp application should he need xrays or further treatment. Getting him to a doctor is unbelievably difficult. We are talking about a guy who stitches his own wounds. Yeah.

I feel some progress has been made meeting with the Dr. today but alas, I need to have another couple of tests to check out my esophagus and swallowing functions. Also the stomach muscles may not be moving at the normal pace which slows down digestion. I heard much about the importance of water and being hydrated. Eat 6 times a day, have a glass of water with each meal. I was surprised to learn that immediately I must stop milk, cheese, red meat and high fructose corn syrup (which promotes constipation) and a host of other things. She gave me a sample dietary plan. I will share more with you. Not consuming milk also includes cream soups which are my favorite. Ah, well, at least we are finally moving forward.

Oh, yes, 3 of those polyps were pre-cancerous for sure. She said I don't know what made you decide to have your colonoscopy, but it was good you did. The scariest part of the whole issue is that my own proctologist from 2001 told me last year I didn't need another one for a few more years, instead of the recommended every 10 years.  My intestinal infection saved my life.

Wednesday, March 21, 2012

Just a check in to say hello and sorry that I am quite tired tonight. Dan fell down a flight of stairs yesterday and the pain is shooting through his right side..from the shoulder, hip, knee and ankle. He is refusing so far to see a doctor thinking a couple days of rest will work but I doubt it. I hate to see him suffer like that.
Tomorrow is my day at the doctors. I am nervous. I want answers that will help me, not more of tests and let;s try this and that. I've been there. I need to eat and get strong. Target is wonderful but I need money desperately. Desperately. Let's cross our fingers.

Tuesday, March 20, 2012

Stick with me, please.  I've had a strong inspiration i know will help all of us.
After I meet with the specialist and learn my limitations and dietary requirements I will share them with all of you. I know there are thousand across the world with stomach and digestion issues, many who can't afford to see the dietitian or learn what to do.  I hope to help.
Afterwards, I will open another blog dedicated to those of us who could learn from each other. I will visit local eateries and list foods that are beneficial and those to avoid. Place that can cater to those with tender tummies, etc. I think it will be fun and educational and help us lighten the burden of living with this discomfort.  We can do it. I only hope you will be with me. When I finally get my new camera out of the bag and memory cards installed and charged it will be fun to include pictures of the foods at the different locations. I have a very good feeling about it.
This blog will remain for my craziness, updates and confidences to you just as before.  I will let you know. This could be the start of a great relationship.

Monday, March 19, 2012

I am trying so hard not to be sad or negative but it is hard when you are starving all day long and what few items you can eat are now making you sick. Thank Goodness, I learned today that I meet with the specialist this Thursday @12:40 pm. My daughter will come with me to help me absorb it all and remember the most important things. Why did they make me wait 5 weeks? That can't be normal, can it?
My brain is getting slower and foggy. I often have to think a sentence through before I can answer.My body is screaming, "feed me". I am trying, dear body, do not give out on me as we are so close to finding the answers and fixing the problem.
Most of my facebook friends have no idea how serious things have been the past few months. I want to rant and cry and state my frustrations but we all have troubles. Some like to share them, others like to keep everything below the surface. You can't blame them.
I need my hummingbirds to entertain and enthrall me. Hope the hurry soon. You can see I am sad tonight, I am sorry. I like to keep those things secret.

Sunday, March 18, 2012

We got the device hooked up and now have Netflix on the front room television. I've been paying the monthly fee for 2 years so the kids could watch movies on my computer whenever they came over. It will be fun having such a great selection of things to watch.  Now, my dilemma. I am bundled with Century Link for my phone, internet & Direct TV. I have to call to see what harm it is going to do me to drop satellite. I am sure they will raise my monthly phone rate but was locked into a plan for the internet for 5 years so...  wish me luck. The whole point is to save money where we can but it won't help much if we are heavily penalized for messing with the bundle.
Haven't checked yet, but am hoping for the tv series, "Magnum P.I.". Tom Selleck is my man.

Love Sunday evenings... The Amazing Race and The Good Wife. Wow. I love that the Race takes me around the world, though sometimes some of those racing have few endearing qualities. The Good Wife has a very good cast, made better by incredible writing that hasn't failed an episode yet. Believable dialogue with a well thought out story is everything.