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Saturday, March 03, 2012

A girlfriend from high school took me out for some soup today and it was great. Zupa's Soup Restaurant.. they are from Utah and now have 11 restaurants. They were so good... lots of variety of soups, salads and sandwiches. I had Wisconsin Cauliflower.
And yes, I got sick an hour later. But the more I can absorb the better. I can't keep being afraid or I won't get any nutrients.
We bought a Vita Mix a few days ago. My husband thinks it will save my life and help his. It is supposed to puree all types of smoothies, soups,dressings, salsas, etc. pulp and all. I will be happier when I am able to eat those things. I'll have to tell you how it works out.
Take care,my friends, I am very tired tonight. Thanks for being there where ever you are.

Thursday, March 01, 2012

It's been a grueling day so forgive me for being brief.My primary care did put me onto a bad medicine that has made all my before and after "scopes" much worse. That is what caused all this intensifying pain and inability to get food down. I am now back on my Prilosec.
I was supposed, on the day of my endoscopy, to have been put on medication and a very strict diet as they found edema in my duodenum which is inflammation and tissue damage.I learned this today because I called angry wondering why no one contacted me. 6 hours later the nurse finally did. She assumed her doctor gave me meds and assumed her doctor informed me of the inflammation and need to be on a very strict diet as it takes 6-10 weeks to heal from something like this. They have yet to figure what caused it... meds, bacteria, disease, foods? I pray the doctor can see me soon
The new med my primary put me on, Dexilant greatly made things worse...burned the inflammation. So to be honest, my pain is the same as 6 weeks ago. But at least we know the colon polyps are clear. I am angry, sad, frustrated. One doctor made me worse, the other forgot me. That is why I feel of no significance. This happens too much in my life. I am a human being, why do so many not see me? Am I invisible?

Wednesday, February 29, 2012

I think it is tomorrow by a minute, it feels like a day since this afternoon. I am getting sicker. Again and just a little despairing. It's been a long time since I've been well and was seriously planning on telling Target to put me on the schedule in 2 weeks but how quickly things can change. I tried the nurse 2 more times with no luck, tomorrow I will insist we speak or I'll drive up there as it is so close.
My body is back almost to the end of January. Stomach pain is more severe, I choke on liquids if I swallow too fast and it looks like the intestinal infection is beginning again. What have I learned? I don't have colon cancer and all 4 polyps are gone. Great! I know little about the endoscopy other than I had an edema and the tissue right there was clear of H pylori. I went in asking them to look for Celiac, ulcers, tumors... inflammation..what is causing all my pain and inability to eat more and more foods. They never mentioned any of that and I am worrying myself that they never did all the exams as ordered. None of those issues were addressed in the test results to my primary care. I need to treat what is wrong..this can't be good for me. The doctor, 5 weeks ago, ordered me to take a new acid reflux drug called Dexilant and I have had heartburn ever since..is that part of it?
Sorry. I really am sorry. I want to tell you all this great news but I am in pain and sad and very bewildered tonight. BUT, tomorrow is another day and hopefully I can learn more and SOMEONE will tell me what I am supposed to do.
I am glad I came here tonight. Talking to you makes it easier.
Trying to get ahold of someone to explain things. Phone tag. They found an edema in the duodenum, no H pylori. No more explanations. Eating is still difficult and very tender inside the stomach, like acid. Oh, blgh! I must stop listening to other people's guesses. They mean well but it doesn't help. The doctor needs to talk to me; she scheduled me for a consult for Mar.21.Are you kidding me? I can't live on Frito's Butter Puffs, Smucker's P&J and cheese forever. That is what I mostly eat...I want other foods but soon after I try something my stomach hurts. There, I have whined enough. Oh, and pistachios.

Monday, February 27, 2012

I succumbed to self pity yesterday worrying about the results of the polyps. I finally got the call tonight from the doctor who told me this: The 3 polyps in the upper left intestines were benign but pre-cancerous meaning every 3 yrs I will have the colonoscopy. The 4th anomaly was a very inflamed tubular ana(something) that was double checked and found to be clear! YES!!!!

Now, it will take a day or two longer to find the results of my 3 stomach biopsies to see if I have Celiac Disease, Ulcers, tumors, etc. Also, apparently, the back of my throat is not working as it should in starting the swallowing process and may be why I keep having large pieces of food slip back and fall down my throat sometimes causing me to choke or cough up solid food.
Can you imagine how much better my life can be if they can find these things and have ways to fix me so I can eat more normal foods (lol, or not if I have Celiac which I CAN live with.)
To eat without fear of choking...
AND, fingers crossed, it may also show soft tissue damage that causes the back of my throat to close when I fall asleep and either stops my breathing or startles me awake with a choking feeling. My Goodness!! My life could improve to much!!! Yes, I am excited. I don't care if Celiac is difficult, it could give me a life back. Whatever they say, I will be GRATEFUL.
My only fear and I can't shake it yet, is that they will say they found nothing and don't know what to do next. I force myself not to think of it but for a quick moment. The power of positive thinking has been proven time and again to be a marvelous healing aid.