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Friday, July 10, 2009

Hi.Not enough time in the day today. Had to run errands for my granddaughter's birthday party and baptism family get-together later tomorrow. In the middle I had to stop and have my narrow-band light therapy. Unfortunately the new girl punched in the wrong length of time and I burned pretty good all 360 degrees of me. Yes, a tad uncomfortable in clothes tonight. As usual when this happens I will suffer a lot tomorrow but kazam! the pain dies after about 24-36 hrs.



Thinking about politics again. There is a gentleman who is our state Attorney General ( he adores the spotlight and photo-ops of his own making) and he recently decided to run for State Senate against our quite old Bob Bennett. I used to talk to Bob when I was on radio. He is so tall and skinny I always imagined a long walking-stick as he pulled himself out of the chair. Until recently I felt he had been in too long,, still do but I am having some uncomfortable doubts about the AG Mark Shurtleff. I watch him closely and he has already begun a somewhat braggart campaign on Twitter and Facebook. His persona is changing, his arrogance that was once a little complimentary is becoming distracting.
At this moment, I would vote for Jason Chaffetz over Mark...Heaven forbid, maybe even for Bob over Mark. I want to feel I can trust whomever it is. Utah is in dire need to have fresh, KNOWLEDGEABLE, honest and constituent-obligated people in Washington DC.I do my own thinking & don't need a party to tell me what to do. I vote for the person and the issue. Only people who can't think for themselves vote straight party line. It breeds hate with no room for compromise.
Anyway, I have a big decision coming up shortly that could cause me pain or great joy. It could cause a blow to my self-esteem or it could give me memories and laughter . School reunion...the dreaded occasion of seeing those who teased or ignored you amongst those you loved and have never forgotten. Trying to work things out with my dearest of old friends that won't be so difficult. Praying a lot for the right thing. Afraid I am already frustrating my friends. But if I meet them I want it fun, perfect and something to always remember with joy.



Thursday, July 09, 2009

The results are finally in... no cirhossis or malignancy in the liver but there is inflammation. My doctor for the Lyp says it is not severe enough to interfere with the methotrexate and to keep taking them. As much as I fear the toxins in the drug I know how much they have helped me since I was first diagnosed with this disease. It makes you a hermit, fearful of stares and cruel words. The light treatments every week and the pills have cured the outside of me to where I'm not as afraid to go out. I used to have pale light skin, then pale skin that started to get small sores and rashes, then tanned skin with lots of freckles and far less noticeable spots. It took 10 years to get to this point and the thought of it all coming back put me into a very dark place. There is no cure, I will die with it, hopefully not from it.It is an extremely rare skin cancer that is a form of Lymphoma... not Melanoma. Only 1 in 1.9 million people get this. At anytime it could turn into full blown Lymphoma but then anyone at anytime could get full blown Lymphoma.
Now, my internist needs to find out what's causing the inflammation internally, its not just the liver but I have far less fear of this. The fact I can now finally give myself Insulin for Diabetes is a huge feat for me. Other issues become just a part of life that you accept and thank God that things are not worse and pray for those whose life is. We all have challenges at one time or another. It is how we choose to deal with them that is important. This was my hardest post so far.